Post by Gwen on Feb 6, 2018 9:47:57 GMT -5
This may be far fetched for many but I've found it useful in changing my approach to PPPD (formerly known as CSD):
www.whirledfoundation.org/wp-content/uploads/2015/09/0809_DIZZINESS-IN-PATIENTS-WITH-VESTIBULAR-DISORDERS.pdf
I initially found this through a link that a member of a CSD group on FB shared along with another link: www.whirledfoundation.org/wp-content/uploads/2015/09/0809_DIZZINESS-IN-PATIENTS-WITH-VESTIBULAR-DISORDERS.pdf
After grappling with PPPD since late May 2017, I find that it is no longer useful for me to try to get to pinpoint the exact physiological mechanism at play for PPPD (my diagnosis from my ENT) as the nervous system is VERY complex and interconnected to areas that affect our digestive systems, vestibular and ocular systems, our sleep, our moods, heart rate/blood pressure and so much more. Likewise our adrenal glands and thyroid are also interconnected by their intrinsic functions as well. So, I'm trying some things I picked up Julia Ross's book The Mood Cure. She discusses how certain dietary and supplemental interventions affect mood and well being - this is the short version, her book is comprehensive and the writing is very accesible. I've read the book twice and have adapted some of her interventions and noticed some improvements. It not an outside in or an inside out approach. These links combined with the book have let me know that its all of these things.
I used to search these forums looking for the magic pill asking others "what are you taking?", "how long have you x,y,z?" and so on, I have come to the conclusion that there is no magic formula - the underlying commonality is whatever gets your brain to calm down, for you to calm down.That may be deep breathing, guided meditation, running (if you have the balance for that), supplements, acupuncture, an SSRI or SNRI, more sleep, more fun, cognitive behavioral therapy, affirmations, probiotics, amino acid therapy, vestibular rehabilitation exercises, or some combination or something else not mentioned here. Its whatever YOUR body responds to that brings down stress levels and allows you to give your attention and energy to other things; your job (if you are working), your relationships, hobbies, exercise, your children, gardening, cleaning, cooking, television, or just allows you to better focus on getting your day done without overly attending to your symptoms with the understanding that they are benign (I'm speaking to those of us who have had the extensive tests, scans, blood work and so on and all has come back negative).
I found the second article harder to stomach than the first because the language is much more up front and you can almost feel yourself getting defensive while reading it because it is an uncomfortable reality to stomach. But the first article has a useful diagram that simplifies it and for me, it really resonated. I hope for anyone who reads this and the articles that it does for them as well. Mind you, this is not an overnight, quick fix, but I think its a useful approach to restoring confidence and ultimately well being to retrain our brains to recalibrate and value the importance of shutting down and leveling off the limbic system responses of flight, fight, freeze in response to chronic long term stress and its triggers. Much love and well wishes for healing to all who read. I'm right there with you...
www.whirledfoundation.org/wp-content/uploads/2015/09/0809_DIZZINESS-IN-PATIENTS-WITH-VESTIBULAR-DISORDERS.pdf
I initially found this through a link that a member of a CSD group on FB shared along with another link: www.whirledfoundation.org/wp-content/uploads/2015/09/0809_DIZZINESS-IN-PATIENTS-WITH-VESTIBULAR-DISORDERS.pdf
After grappling with PPPD since late May 2017, I find that it is no longer useful for me to try to get to pinpoint the exact physiological mechanism at play for PPPD (my diagnosis from my ENT) as the nervous system is VERY complex and interconnected to areas that affect our digestive systems, vestibular and ocular systems, our sleep, our moods, heart rate/blood pressure and so much more. Likewise our adrenal glands and thyroid are also interconnected by their intrinsic functions as well. So, I'm trying some things I picked up Julia Ross's book The Mood Cure. She discusses how certain dietary and supplemental interventions affect mood and well being - this is the short version, her book is comprehensive and the writing is very accesible. I've read the book twice and have adapted some of her interventions and noticed some improvements. It not an outside in or an inside out approach. These links combined with the book have let me know that its all of these things.
I used to search these forums looking for the magic pill asking others "what are you taking?", "how long have you x,y,z?" and so on, I have come to the conclusion that there is no magic formula - the underlying commonality is whatever gets your brain to calm down, for you to calm down.That may be deep breathing, guided meditation, running (if you have the balance for that), supplements, acupuncture, an SSRI or SNRI, more sleep, more fun, cognitive behavioral therapy, affirmations, probiotics, amino acid therapy, vestibular rehabilitation exercises, or some combination or something else not mentioned here. Its whatever YOUR body responds to that brings down stress levels and allows you to give your attention and energy to other things; your job (if you are working), your relationships, hobbies, exercise, your children, gardening, cleaning, cooking, television, or just allows you to better focus on getting your day done without overly attending to your symptoms with the understanding that they are benign (I'm speaking to those of us who have had the extensive tests, scans, blood work and so on and all has come back negative).
I found the second article harder to stomach than the first because the language is much more up front and you can almost feel yourself getting defensive while reading it because it is an uncomfortable reality to stomach. But the first article has a useful diagram that simplifies it and for me, it really resonated. I hope for anyone who reads this and the articles that it does for them as well. Mind you, this is not an overnight, quick fix, but I think its a useful approach to restoring confidence and ultimately well being to retrain our brains to recalibrate and value the importance of shutting down and leveling off the limbic system responses of flight, fight, freeze in response to chronic long term stress and its triggers. Much love and well wishes for healing to all who read. I'm right there with you...