Welcome to the new forum specifically for Chronic Subjective Dizziness and Persistent Postural-Perceptual Dizziness
A community for those of us that are dizzy and looking for answers

Welcome and Symptom Poll - Getting Started

Board Threads Posts Last Post
No New Posts Introductions and new users here

Please introduce yourself here and tell the group a little bit, or allot about yourself.

54 221 My dizziness story - looking for someone who can relate
by Pree
Aug 30, 2021 12:19:27 GMT -5
No New Posts Symptom Poll

For a greater understanding of what you are experiencing with this illness, feel free to select the symptoms you are experiencing.

Moderator: Michael T

1 2 Symptom Poll
by eliuri
Dec 29, 2014 20:54:27 GMT -5

Core Categories and topics

Board Threads Posts Last Post
No New Posts ** Want to add a category not in the Core? **

Don't see a category that you think should be added to the core categories list? Use this thread to post the suggestion for new core categories or sub-categories and I will add it.

1 5 Suggest Categories Here
by eliuri
May 14, 2015 20:10:49 GMT -5
No New Posts Theories and Speculation about CSD / PPPD

Use this thread to post any theories you have heard of or know of / tried that can add relevant discussion to this illness. What are others saying?

10 34 Dr. Roseli Bittar’s Treatment
by Arnold
Jul 25, 2018 20:42:51 GMT -5
No New Posts Alternative Medicines and Healing / Non Traditional

Had any oriental medicine, acupuncture, calm therapy, non medical therapy, meditation, transcendental meditation? How has it worked or not worked? Post it here.

6 57 Laser Treatments & Chiropractor
by ryane52
Aug 6, 2016 4:08:52 GMT -5
No New Posts Experimental and Clinical Trials

Share your experience with any experimental or clinical trials you have participated in or would like to participate in here. Know of a trial?, post it here.

2 2 New treatment in 2015 Dr Bittar Preliminary
by Arnold
Jul 25, 2018 20:44:47 GMT -5
No New Posts Mental Illnesses / Comorbidities associated with CSD / PPPD

Anxiety/Depression/Insomnia/Cognitive Difficulties/OCD Disorders

3 17 Visual Heterophoria
by silverboar
Jan 3, 2016 15:54:47 GMT -5
No New Posts Medical: Doctors, Testing, and Diagnosis / misdiagnosis

Use this thread to share your history with docs, specialists, diagnoses, prognosis, testing (rotary chair / caloric / balance), etc...

What were the results?

6 55 history of my PPPD
by Michael T
Jul 26, 2017 19:00:58 GMT -5
No New Posts Muscle Pain and Tension: Neck, Shoulder and elsewhere

Here, please talk about any pain you have, that may be consistent (or not) with this issue. Some believe that this may be a root cause or collateral cause of / from the dizziness itself.

1 1 Muscle Co-contraction in CSD
by eliuri
Feb 22, 2015 3:50:44 GMT -5
No New Posts Medications for CSD / PPPD

What meds have you been prescribed for your issues with CSD / PPPD. What's working, whats not? What are the side affects, results, problems, strengths, weaknesses?

11 95 Medications thusfar / treatments
by raluca
Dec 2, 2020 13:29:41 GMT -5
No New Posts Brain Fog in CSD / PPPD

Ahhhh yeas, good ole brain fog and forgetfulness, etc...do you have brain fog with CSD? Whats it like for you and how do you cope / manage / treat it.

1 4 Brain Fog
by kenseth20
Jan 1, 2015 10:19:33 GMT -5
No New Posts Headaches and CSD: Tension Type or Migraine

Many of us have headaches alongside CSD/PPPD, even migraines or MAV like symptoms. Lets discuss that here.

0 0 No posts have been made on this board.
No New Posts Spacial Orientation / Trapped Feeling

This is a thread to talk about any "other types" of feelings that may accompany CSD PPPD, like the feeling of being trapped, disoriented in the marketplace, looking for exits, etc...

3 5 Squinting or overfocusing
by Somnath.
Dec 29, 2016 9:50:02 GMT -5
No New Posts Triggers and Instigators

What causes you to have dizziness relapse or provokes you to be more dizzy? It would be interesting to know about your specific triggers.

5 63 Weather Conditions and Barometric Pressure
by ladyjarhead
Aug 1, 2018 19:29:00 GMT -5
No New Posts Reactions to certain foods or drink

Here is a category to discuss any foods or drinks that irritate this condition. Please share your experiences here.

2 8 Food reactions (Jackie Woody) - from Facebook
by Numbers
Jun 29, 2021 21:48:49 GMT -5
No New Posts Vestibular Rehabilitation Therapy for CSD

Are you doing or been prescribed VRT for your CSD. What are your stories, what has worked or not worked for you?

16 45 How can i retrain my brain?
by eliuri
Apr 19, 2016 17:35:38 GMT -5
No New Posts Behavioral Approaches for CSD: Walking, Exercise, etc.

Information on how to cope / manage / compensate CSD PPPD with behavioral changes, routines, Physical Therapy, etc...

5 63 Reversing Arm Motions while Walking
by eliuri
Oct 6, 2015 19:20:18 GMT -5

Neighborhood news and updates

Board Threads Posts Last Post
No New Posts Clinicians, Research Facilities who show understanding / skill and insight in treating CSD / PPPD

Clearing house for clinicians, research facilities, etc....who show understanding, skill, and insight in how to treat CSD

1 5 Walter Reed National Military Medical Center
by Michael T
Sept 8, 2017 3:47:14 GMT -5
No New Posts Suggestions and Comments

I am always looking to improve, as I cannot possibly fathom all of the things we may need to talk about here, so please feel free to let me know here.

6 17 Can no longer use this forum
by Michael T
Sept 8, 2017 3:48:16 GMT -5
No New Posts Chronic Subjective Dizziness (CSD) / Persistent Postural-Perceptual Dizziness is created

The neighborhood was created

1 3 Board Created
by Michael T
Dec 28, 2014 19:34:54 GMT -5

Diaries and Lifestyle

Board Threads Posts Last Post
No New Posts Success Stories

Beating CSD? Kicking Dizziness's butt? Feeling better? Share your success stories here to give all of us hope that there is light at the end of this tunnel we are sharing.

5 28 My Story
by Ulysses
Jun 25, 2020 15:06:27 GMT -5
No New Posts Ranting, Raving and Venting

Having a bad day? A good day? Want to talk about it or just vent? Lets hear your frustrations here in this thread! - no holds barred...

1 5 What, no ranting?
by lazey
Jun 16, 2015 0:48:22 GMT -5
No New Posts Activity Log / Diary

Feel free to share you experiences here and keep a log / diary of your symptoms and journey.

7 142 Diff. between "doing something" and "allowing it to happen"
by eliuri
Jul 31, 2015 15:40:34 GMT -5

Documents and Information (Upload here)

Board Threads Posts Last Post
No New Posts Useful Links

Place links to useful sites and websites here.

4 6 Dizziness and computer work
by Michael T
Feb 4, 2016 17:51:17 GMT -5
No New Posts Documents related to CSD / PPPD (Uploads)

A place to post documents / attachments and periodicals related / relevant to CSD / PPPD

22 80 Sarah Edelman: Psycho-Physiological Dizziness Syndrome
by karen mcalpine
Oct 17, 2019 17:44:37 GMT -5


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Last Updated: My dizziness story - looking for someone who can relate by Pree (Aug 30, 2021 12:19:27 GMT -5)
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Michael T: OK elluri, you WIN !!! gosh....... :| May 13, 2015 18:40:21 GMT -5
Michael T: (:)) May 13, 2015 18:40:32 GMT -5
eliuri: thanks, michael...really do appreciate it..as i said most other forums , their layout works fine with me..im a bit visually hypersensitive..so thanks for accomodating this weakness of mine May 13, 2015 20:11:04 GMT -5 *
Michael T: P-) Aye Aye Captain May 14, 2015 17:42:52 GMT -5
eliuri: well, now that Mt Sinai hospital has developed a successful treatment for Mdds, a long cruise might induce the Mdds..so ill rock in opposite direction...that will of course get rid of the CSD by neutralizing it...So anyhow, bring on those ships ;) May 14, 2015 20:00:02 GMT -5
ccube1234: The spinning has not stopped. I'm following up with doctor in a couple of weeks. I took 3 Zoloft today. It should take a couple of days to see if it takes effect. Aug 4, 2015 13:30:05 GMT -5
jools: What's up everyone? It's been way too quiet lately. Sept 7, 2015 10:17:46 GMT -5
Michael T: Hi Jools, yes WAYYYYYY too quiet !!! Nov 27, 2015 19:16:50 GMT -5
jools: Does anyone know what has happened to Dizzytimes.com forums? Has the community moved somewhere else? Nov 30, 2015 6:11:24 GMT -5
Michael T: Not sure Jool, sorry, I havent looked ! Jan 6, 2016 4:28:58 GMT -5
charliegirl: Hi everyone. I am so happy I have found this forum. I am a female, 56 yrs. old. I know I have BPPV, but this is a real eye opener and a real explanation for my constant feeling of unsteadiness between BPPV attacks. Apr 24, 2016 11:20:34 GMT -5
Michael T: Test Test ----- Helooooooo !! lol, lets re-energize this board ! ::) Nov 9, 2016 18:23:04 GMT -5
Michael T: :v Jun 7, 2017 6:26:43 GMT -5
woodsy: Hi I'm new to this forum but have the same issues as many, Mar 31, 2018 7:42:40 GMT -5
woodsy: P my dizziness clears up if I take benzio Mar 31, 2018 7:43:45 GMT -5
woodsy: or if I drink alcohol :D Mar 31, 2018 7:44:33 GMT -5
woodsy: why is there not a simple explanation ? My doctor does not know the answer, how is this condition treated? Mar 31, 2018 7:46:50 GMT -5
levade: The benzos work! Oddly enough a low dose of halcion in the morning got rid of dizziness right away! ( But my Dr wouldn't give it to me because it's for sleeping.....gave me Xanax instead........which didn't work nearly as well. Apr 10, 2018 8:14:21 GMT -5
zambi: Finally a diagnostic category! New user, 10 years pppd Jul 18, 2018 17:01:26 GMT -5
zambi: Could hydrocodone for back injury cause or exacerbate pppd? Jul 18, 2018 17:07:04 GMT -5